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National Albanian Registry United States of America

Advisory Board · Healthcare advisor

Physicians, nurses, behavioral-health specialists, and public-health professionals serving Albanian-American populations.

Albanian-American mental-health outcomes are barely documented. Pre-existing-condition prevalence in the diaspora is barely documented. NAR is the first community-led count that can change that. The Advisory Board is where healthcare professionals shape what gets asked and what stays private.

Who fits

  • Physicians (any specialty) practicing in regions with substantial Albanian-American patient populations
  • Nurses, nurse practitioners, and clinical leadership at hospitals or clinics serving the community
  • Behavioral-health specialists — therapists, psychiatrists, counselors — with diaspora-specific or culturally competent practice
  • Public-health professionals, epidemiologists, or health-policy researchers focused on diaspora outcomes
  • Most acute gap: mental-health practitioners with diaspora-specific experience

What you bring

Clinical literacy on what data is safe to ask and what data has been weaponized historically. Awareness of the cultural barriers around mental-health discussion in Albanian communities. A check on whether NAR's data-policy decisions respect HIPAA-adjacent norms even though we're not a covered entity.

What NAR needs from you specifically

Health data is the most easily misused dataset on the internet. The Advisory Board's vote on data-policy changes is specifically structured so that healthcare voices can stop a bad question from going live before it harms anyone. We'd rather lose a quarter than ask a question that breaks community trust.

What you get

  • A vote on consequential org decisions (data policy, bylaws, dissolution)
  • Direct line to the President, Treasurer, and Secretary at quarterly meetings
  • First look at NAR data on community demographics, geographic clustering, and any health-relevant signals
  • Listed publicly with your name + sector + city/state (opt-out available)
  • A research vehicle for diaspora-specific public health work

Why this matters

There is no NIH-funded longitudinal study of Albanian-American health outcomes. There is no CDC surveillance dataset. The community is invisible to the public-health system in ways that quietly accumulate into worse care, missed diagnoses, and lost lives. NAR's data is the start of that becoming visible — but only if healthcare advisors are in the room when we decide what to collect and what to publish.

Mechanics

Contribution
$0 — volunteer seat
Term
2 years, renewable
Cadence
Quarterly meetings (in person, video, or hybrid)
Authority
Per-advisor vote on data policy / bylaws / dissolution; no fiduciary duty (Article IV-A + II)

Apply as a healthcare advisor

No references required. The board reviews applications weekly; we get back to everyone within 7–14 days.

About you
Sector
Sector(s) — pick at least one
Your role
What you bring
What you bring — pick at least one
Conflicts of interest + political activity
Do you hold an active partisan political role (candidate, campaign staff, party endorsement)?
Consent